Patient Resources/ Helpful Links
This is a collection of links to organizations, educational resources and reference services that some patients have found to be useful. This list is by no means inclusive and is only provided as some potential informational resources.
Topic Contact Information
General Medical Information
Medline
http://www.ncbi.nlm.nih.gov/PubMed/
Medscape
http://intapp.medscape.com/px/medlineapp/medline?cid=med
U.S. National Library of Medicine
http://www.nlm.nih.gov/
National Health Information Center
http://www.health.gov/nhic/
Healthfinder
http://www.healthfinder.gov/
Agency for Healthcare Research Quality
http://www.ahrq.gov/
National Guidelines Clearinghouse
http://www.guideline.gov/
General Neuro-Related Information
Neuro:// On-Call (American Association of Neurological Surgeons)
http://www.neurosurgery.org/
American Academy of Neurologists
http://www.aan.com/public/index.cfm
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/
Society for Neurosciences
http://web.sfn.org/
American Academy of Neurological and Orthopedic Surgeons
http://www.aanos.org/
Alzheimer’sDisease
Alzheimer’s Association
http://www.alz.org/
Telephone: 1-800-272-3900
Aneurysms and AVMs
Aneurysm and AVM Support Group
http://www.westga.edu/~wmaples/aneurysm.html
Aphasia
Academy of Aphasia
http://www.academyofaphasia.org/
Telephone: 1-925-372-2670
National Aphasia Association
Telephone: 1-800-922-4622
Back Care
American Academy of Orthopedic Surgeons
http://www.aaos.org/wordhtml/home2.htm
Telephone: 1-800-346-AAOS
American Academy of Physical Medicine and Rehabilitation Physicians
http://www.aapmr.org/
American Chiropractic Association
http://www.amerchiro.org/
Telephone: 1-800-986-4636
National Institute of Arthritis and Musculoskeletal and Skin Disease
http://www.niams.nih.gov/
Telephone: 1-877-22-NIAMS
Brain Tumor Resources
National Brain Tumor Foundation
Telephone: 1-800-934-CURE
The Brain Tumor Society
http://www.tbts.org/
Telephone: 1-800-770-8287
American Brain Tumor Association
http://www.abta.org/
Telephone: 1-800-886-2282
The Children’s Brain Tumor Foundation
http://www.childhoodbraintumor.org/
Telephone: 1-977-217-4166
Acoustic Neuroma Association
http://anausa.org/
Telephone: 1-770-205-8211
Cancer
American Cancer Society
http://www.cancer.org/docroot/home/index.asp
Telephone: 1-800-ACS-2345
Cancer Information Service
http://cis.nci.nih.gov/
Telephone: 1-800-4-cancer
Caregiver Support
Well Spouse Foundation
http://www.wellspouse.org/
Telephone: 1-800-838-0879
Clinical Trials
National Institute of Health
http://www.cc.nih.gov/
National Institute of Health Information Center: Patient Recruitment and Public Liaison Office
http://www.cc.nih.gov/ccc/prpl/
Telephone: 1-800-411-1222
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/
Brain Tumor Trials
http://www.virtualtrials.com/
Society for Women’s Health Research
http://www.womens-health.org/
Telephone: 1-202-223-8224
National Organization of Rare Disorders
http://www.rarediseases.org/
Epilepsy Information
The Epilepsy Foundation
http://www.epilepsyfoundation.org/
Telephone: 1-800-332-1000
Grief
Compassionate Friends (Grief Support after loss of child)
Telephone: 1-800-969-0010
Head Injury Resources
Brain Injury Association of America
http://www.biausa.org/Pages/splash.html
Telephone: 1-703-761-0750
ThinkFirst
http://www.thinkfirst.org/
The International Brain Injury Association
http://www.internationalbrain.org/
Headache
American Council for Headache Education
http://www.achenet.org/
National Headache Foundation
M.A.G.N.U.M (Migraines)
http://www.migraines.org/
Pain Resources
The American Pain Foundation
http://www.painfoundation.org/
The American Chronic Pain Foundation
http://www.theacpa.org/
The American Academy of Pain Management
http://www.aapainmanage.org/
Parkinson’s Disease/Tremors
National Parkinson Foundation
http://www.parkinson.org/
Telephone: 1-800-327-4545
American Parkinson’s Disease Association
http://www.apdaparkinson.org/user/index.asp
Telephone: 1-888-400-2732
Coping with Essential Tremor
http://www.essentialtremor.org/
Practitioner Databanks
National Practitioner Databank
American Medical Association Physician Select
http://www.ama-assn.org/aps/amahg.htm
Spinal Cord Injury
American Spinal Cord Injury Association
http://www.asia-spinalinjury.org/home/index.html
Telephone: 1-404-355-9772
National Rehabilitation Information Center for Independence
http://www.naric.com/
American Paraplegia Society
http://www.apssci.org/
Stroke
The Brain Matters
http://www.thebrainmatters.org/stroke.htm
National Stroke Association
http://209.107.44.93/NationalStroke/Default.htm
American Stroke Association
http://www.strokeassociation.org
American Heart Association
http://www.americanheart.org/presenter.jhtml?identifier=1200000
Trigeminal Neuralgia
The Trigeminal Neuralgia Association
http://www.tna-support.org/welcome.html
Wellness National Wellness Institute
http://www.nationalwellness.org/nwi_Home/nwi.asp